WEST PALM BEACH, FL -- Many parents say the first year of their baby's life just flies by.
RyLeigh Hall's mother wishes she could say the same.
Jamie Webber tells NewsChannel 5, "Oh, its been a long year."
Instead of just milestones, RyLeigh's life is also measured in hospital visits, tests and frustration.
She was born with congenital lymphangioma, causing a tumor that quickly grew to the size of an orange.
Doctors tell the family there is no cure.
Donations from NewsChannel 5 viewers poured in and the Vero Beach family was able to make four trips to Boston for treatment.
At first it seemed like the miracle they've prayed for.
Weber explains, "We look at pictures from back when she was younger and we don't even remember her being like that."
The treatment in Boston made the protruding tumor disappear but her struggle doesn't end there.
"All her big cysts are gone, now its just the smaller ones. She has lots of, its like, tiny fish eggs she has hundreds of thousands of those," Weber tells NewsChannel 5.
The tiny cysts are growing larger and they can't be surgically removed.
Then, on RyLeigh's first birthday Friday, there was a new problem.
After blowing out her candle and playing in frosting, RyLeigh's family went to suction mucus out of her tracheostomy tube.
Instead, blood came out.
They rushed her to Saint Mary's Medical Center where she's spent the past few days in intensive care being treated for three infections.
"Its just one thing after another," Weber sighs.
Its just one thing after another for the smiling little girl spending her birthday hooked to tubes and the family by her bedside determined to find a cure.
Tami Hall, RyLeigh's grandmother says, "There's got to be a doctor out there who can fix RyLeigh."
Anyone who knows of a doctor who could help treat RyLeigh can e-mail mgonzalez@wptv.com.
There is also a fund established to help fund RyLeigh's ongoing medical expenses.
To donate, send a check to: RyLeigh Hall Trust Account # 6005340302 Seacoast Bank 5555 20th Street, Vero Beach, FL 32966
